How has patient advocacy grown to become the driver of rare disease drug development? In today's episode of Biorasi's Few & Far Between podcast, host Marc Gas, PhD, welcomes Kelly Franchetti, RN, SVP at YPrime, to discuss where advocacy is headed and where it needs to go.
Welcome to Few & Far Between: Conversations About Rare Disease Research with your host, Chris O'Brien. Episode Zero contains everything you need to know...
"The history of rare disease drug development indicates that once you start looking harder for cases, you often tend to find them." - Will...
"We work with hundreds of patients a month, helping them understand their own medical history and then tracking what happens to them in the...