How has patient advocacy grown to become the driver of rare disease drug development? In today's episode of Biorasi's Few & Far Between podcast, host Marc Gas, PhD, welcomes Kelly Franchetti, RN, SVP at YPrime, to discuss where advocacy is headed and where it needs to go.
"We have to rethink the sense of clinical research from the point of view that if we have the possibility to have markers that...
"I hope we're moving into the age of the generalist, where knowing how to learn and learning how to learn are more important than...
"We work with hundreds of patients a month, helping them understand their own medical history and then tracking what happens to them in the...