How will a rare disease diagnosis affect your family? Today's Few & Far Between episode features Bo Bigelow, Chairman at the Foundation for USP7-Related Diseases and Co-Founder of DISORDER: The Rare Disease Film Festival, and Trish Flanagan, President at the Yellow Brick Road Project.
On today's podcast, speaker and rare disease advocate David Rose talks with Biorasi's Dr. Raul Silveira about occipital horn syndrome and supporting rare disease...
"So we built the seatbelts before the car, so to speak, wherein we did a project to figure out ways to biocontain these organisms....
"We have to rethink the sense of clinical research from the point of view that if we have the possibility to have markers that...