Social media platforms and podcasts are spotlighting the untold stories of rare disease patients and their families. Find out more in today's Few & Far Between podcast episode. Biorasi's Becky Knockemus welcomes guests Effie Parks, host of the Once Upon a Gene podcast, and Špela Miroševič, co-founder and president of the CTNNB1 Foundation.
"And what I was really surprised about was that everybody was doing data collection in a different way. And I kept thinking that, gosh,...
On today’s podcast, host Wayne Bowden, Vice President of Partnerships and Strategy at Biorasi, talks with Marianne Clancy, Executive Director at Cure HHT, about...
"You have to have the right people, the right team, and good science." - John Celebi, President and CEO, Sensei Bio Welcome back to...