Social media platforms and podcasts are spotlighting the untold stories of rare disease patients and their families. Find out more in today's Few & Far Between podcast episode. Biorasi's Becky Knockemus welcomes guests Effie Parks, host of the Once Upon a Gene podcast, and Špela Miroševič, co-founder and president of the CTNNB1 Foundation.
"Try to find the people who have a really strong background in regulatory science, who really understand the fundamentals, and who you believe can...
Welcome to Few & Far Between: Conversations About Rare Disease Research with your host, Chris O'Brien. Episode Zero contains everything you need to know...
"So we built the seatbelts before the car, so to speak, wherein we did a project to figure out ways to biocontain these organisms....