Social media platforms and podcasts are spotlighting the untold stories of rare disease patients and their families. Find out more in today's Few & Far Between podcast episode. Biorasi's Becky Knockemus welcomes guests Effie Parks, host of the Once Upon a Gene podcast, and Špela Miroševič, co-founder and president of the CTNNB1 Foundation.
"There's that old saying, 'culture is how people behave when nobody's looking.' So, if you want to be effective, your [mission and value statements]...
"If you bring powerful technology to a problem that is well understood, then you can really make a difference." - Marc Lajoie, CEO at...
How can DAOs - Decentralized Autonomous Organizations - improve rare disease research? Biorasi's Few & Far Between Podcast welcomes Dr. Jocelynn Pearl, Senior Scientist...