Social media platforms and podcasts are spotlighting the untold stories of rare disease patients and their families. Find out more in today's Few & Far Between podcast episode. Biorasi's Becky Knockemus welcomes guests Effie Parks, host of the Once Upon a Gene podcast, and Špela Miroševič, co-founder and president of the CTNNB1 Foundation.
“Our studies are open for those that have exhausted standard of care, and we're showing improved responses, and the data is promising. So, I...
How do you obtain the best possible patient care available? On this week's Few & Far Between podcast, host Chris O'Brien welcomes patient advocacy...
"We have to rethink the sense of clinical research from the point of view that if we have the possibility to have markers that...