Social media platforms and podcasts are spotlighting the untold stories of rare disease patients and their families. Find out more in today's Few & Far Between podcast episode. Biorasi's Becky Knockemus welcomes guests Effie Parks, host of the Once Upon a Gene podcast, and Špela Miroševič, co-founder and president of the CTNNB1 Foundation.
"We work with hundreds of patients a month, helping them understand their own medical history and then tracking what happens to them in the...
"Try to find the people who have a really strong background in regulatory science, who really understand the fundamentals, and who you believe can...
"Patients have already been exposed to these large language models (LLMs). Yes, they are aware of the risks, but they are also very aware...