How has patient advocacy grown to become the driver of rare disease drug development? In today's episode of Biorasi's Few & Far Between podcast, host Marc Gas, PhD, welcomes Kelly Franchetti, RN, SVP at YPrime, to discuss where advocacy is headed and where it needs to go.
"I hope we're moving into the age of the generalist, where knowing how to learn and learning how to learn are more important than...
“Our studies are open for those that have exhausted standard of care, and we're showing improved responses, and the data is promising. So, I...
Why are advocacy and accessibility so important to rare diseases such as Batten Disease? On this week’s Few & Far Between podcast episode, Biorasi’s...