How do you start in building a rare disease foundation? Biorasi's Few & Far Between Podcast Welcomes Jill Hawkins, Founder and President of the FAM177A1 Research Fund, to discuss the impact of an ultrarare disease on her family and the importance of moving forward towards awareness, support, and treatment.
Why are advocacy and accessibility so important to rare diseases such as Batten Disease? On this week’s Few & Far Between podcast episode, Biorasi’s...
"And what I was really surprised about was that everybody was doing data collection in a different way. And I kept thinking that, gosh,...
How much do you know about clinical trials in Latin America? Take a deep dive with us as we explore the benefits and risks...