How do you start in building a rare disease foundation? Biorasi's Few & Far Between Podcast Welcomes Jill Hawkins, Founder and President of the FAM177A1 Research Fund, to discuss the impact of an ultrarare disease on her family and the importance of moving forward towards awareness, support, and treatment.
"We work with hundreds of patients a month, helping them understand their own medical history and then tracking what happens to them in the...
"If you bring powerful technology to a problem that is well understood, then you can really make a difference." - Marc Lajoie, CEO at...
"There's that old saying, 'culture is how people behave when nobody's looking.' So, if you want to be effective, your [mission and value statements]...