Episode 17: Amy Fenton Parker, President and CEO at Batten Disease Support and Research Organization (BDSRA)

Episode 17 January 12, 2022 00:39:58
Episode 17: Amy Fenton Parker, President and CEO at Batten Disease Support and Research Organization (BDSRA)
Few & Far Between
Episode 17: Amy Fenton Parker, President and CEO at Batten Disease Support and Research Organization (BDSRA)

Jan 12 2022 | 00:39:58

/

Show Notes

Why are advocacy and accessibility so important to rare diseases such as Batten Disease? On this week’s Few & Far Between podcast episode, Biorasi’s Becky Knockemus talks with Amy Fenton Parker, President and CEO at Batten Disease Support and Research Organization (BDSRA).

Other Episodes

Episode 23

September 14, 2022 00:37:26
Episode Cover

Episode 23: Dr. Arun Bhatt, Consultant for Clinical Research and Drug Development in India

What makes India a smart and viable setting for today’s clinical trials? Join us for the latest episode of Few & Far Between. Biorasi's ...

Listen

Episode 44

October 23, 2024 00:44:29
Episode Cover

Episode 44: Jonathan Scheiman, PhD, Co-Founder and CEO at FitBiomics

"We don't endeavor to make elite athletes better. We endeavor to make society healthier." - Jonathan Scheiman, PhD, Co-Founder and CEO at FitBiomics Welcome...

Listen

Episode 12

October 13, 2021 00:46:48
Episode Cover

Episode 12: Effie Parks and Spela Mirosevic

Social media platforms and podcasts are spotlighting the untold stories of rare disease patients and their families. Find out more in today's Few &...

Listen