Episode 17: Amy Fenton Parker, President and CEO at Batten Disease Support and Research Organization (BDSRA)

Episode 17 January 12, 2022 00:39:58
Episode 17: Amy Fenton Parker, President and CEO at Batten Disease Support and Research Organization (BDSRA)
Few & Far Between: Conversations from the Front Lines of Drug Development
Episode 17: Amy Fenton Parker, President and CEO at Batten Disease Support and Research Organization (BDSRA)

Jan 12 2022 | 00:39:58

/

Show Notes

Why are advocacy and accessibility so important to rare diseases such as Batten Disease? On this week’s Few & Far Between podcast episode, Biorasi’s Becky Knockemus talks with Amy Fenton Parker, President and CEO at Batten Disease Support and Research Organization (BDSRA).

Other Episodes

Episode 18

March 23, 2022 00:55:46
Episode Cover

Episode 18: Karen Petrou and David Brint - BioBonds

On this week’s Few & Far Between podcast episode, Biorasi’s CEO, Chris O'Brien, welcomes Karen Petrou and David Brint for an in-depth discussion on...

Listen

Episode 36

December 05, 2023 00:51:43
Episode Cover

Episode 36: Zak Kohane, Department of Biomedical Informatics at Harvard Medical School

"Patients have already been exposed to these large language models (LLMs). Yes, they are aware of the risks, but they are also very aware...

Listen

Episode 38

May 23, 2024 00:35:24
Episode Cover

Episode 41: Craig Serra, Head of Clinical Research Scientific and Technical Engagement, Flatiron Health

"It's amazing how many companies there are and how many opportunities for a kind of a match between a human that needs some help...

Listen