Why are advocacy and accessibility so important to rare diseases such as Batten Disease? On this week’s Few & Far Between podcast episode, Biorasi’s Becky Knockemus talks with Amy Fenton Parker, President and CEO at Batten Disease Support and Research Organization (BDSRA).
"Patients have already been exposed to these large language models (LLMs). Yes, they are aware of the risks, but they are also very aware...
"And what I was really surprised about was that everybody was doing data collection in a different way. And I kept thinking that, gosh,...
"So we built the seatbelts before the car, so to speak, wherein we did a project to figure out ways to biocontain these organisms....