Why are advocacy and accessibility so important to rare diseases such as Batten Disease? On this week’s Few & Far Between podcast episode, Biorasi’s Becky Knockemus talks with Amy Fenton Parker, President and CEO at Batten Disease Support and Research Organization (BDSRA).
“We can’t take the orphan drug revolution for granted.“ Biorasi’s Few & Far Between Podcast welcomes Jim Geraghty, author and biotech industry veteran, to...
"Patients have already been exposed to these large language models (LLMs). Yes, they are aware of the risks, but they are also very aware...
"We work with hundreds of patients a month, helping them understand their own medical history and then tracking what happens to them in the...