On today's podcast, speaker and rare disease advocate David Rose talks with Biorasi's Dr. Raul Silveira about occipital horn syndrome and supporting rare disease patients in the workforce.
"I hope we're moving into the age of the generalist, where knowing how to learn and learning how to learn are more important than...
"And what I was really surprised about was that everybody was doing data collection in a different way. And I kept thinking that, gosh,...
Raising awareness for rare diseases, such as Angelman Syndrome, should not be something parents, patients, and advocates have to do alone. Today's episode of...