On today's podcast, speaker and rare disease advocate David Rose talks with Biorasi's Dr. Raul Silveira about occipital horn syndrome and supporting rare disease patients in the workforce.
“Our studies are open for those that have exhausted standard of care, and we're showing improved responses, and the data is promising. So, I...
"We work with hundreds of patients a month, helping them understand their own medical history and then tracking what happens to them in the...
"And what I was really surprised about was that everybody was doing data collection in a different way. And I kept thinking that, gosh,...