On today's podcast, speaker and rare disease advocate David Rose talks with Biorasi's Dr. Raul Silveira about occipital horn syndrome and supporting rare disease patients in the workforce.
How do you start in building a rare disease foundation? Biorasi's Few & Far Between Podcast Welcomes Jill Hawkins, Founder and President of the...
"The history of rare disease drug development indicates that once you start looking harder for cases, you often tend to find them." - Will...
"We work with hundreds of patients a month, helping them understand their own medical history and then tracking what happens to them in the...