Raising awareness for rare diseases, such as Angelman Syndrome, should not be something parents, patients, and advocates have to do alone. Today's episode of Few & Far Between features Dr. Terry Jo Bichell, Founder and Director of COMBINEDBrain. Biroasi CEO, Chirs O'Brien, is your host for this discussion on biomarkers, treatment, and the rise in community collaboration across rare diseases.
"The history of rare disease drug development indicates that once you start looking harder for cases, you often tend to find them." - Will...
Why is the sharing of data so crucial to #raredisease research? Tune in for today's full episode of Few & Far Between. Episode 10...
"So we built the seatbelts before the car, so to speak, wherein we did a project to figure out ways to biocontain these organisms....