Episode 21: Jill Hawkins, Founder and President of the FAM177A1 Research Fund

Episode 21 June 23, 2022 00:36:29
Episode 21: Jill Hawkins, Founder and President of the FAM177A1 Research Fund
Few & Far Between
Episode 21: Jill Hawkins, Founder and President of the FAM177A1 Research Fund
/

Show Notes

How do you start in building a rare disease foundation? Biorasi's Few & Far Between Podcast Welcomes Jill Hawkins, Founder and President of the FAM177A1 Research Fund, to discuss the impact of an ultrarare disease on her family and the importance of moving forward towards awareness, support, and treatment.

Other Episodes

Episode 8

August 18, 2021 00:41:04
Episode Cover

Episode 8: David Rose, Rare Disease Speaker and Advocate

On today's podcast, speaker and rare disease advocate David Rose talks with Biorasi's Dr. Raul Silveira about occipital horn syndrome and supporting rare disease patients in the workforce. ...

Listen

Episode 0

May 12, 2021 00:02:29
Episode Cover

Episode 0: Welcome to the Few & Far Between Podcast

Welcome to Few & Far Between: Conversations About Rare Disease Research with your host, Chris O'Brien. Episode Zero contains everything you need to know about the podcast and Biorasi's goal to provide an open discussion on trending topics and innovations in rare and urgent disease clinical research.     ...

Listen

Episode 1

May 18, 2021 00:41:00
Episode Cover

Episode 1: Paula Evans, CEO and Co-Founder of GeneTx Biotherapeutics

On today’s podcast, Jimmy El Hokayem, Head of the Neurology and Regenerative Medicine Centers of Excellence and Associate Director of Program Development at Biorasi, will be talking with Paula Evans, CEO and Co-Founder of GeneTx Biotherapeutics. ...

Listen