Why is the sharing of data so crucial to #raredisease research? Tune in for today's full episode of Few & Far Between. Episode 10 features Sharon Terry, CEO at Genetic Alliance and #pseudoxanthomaelasticum (PXE) advocate.
"It's amazing how many companies there are and how many opportunities for a kind of a match between a human that needs some help...
On today’s podcast, host Wayne Bowden, Vice President of Partnerships and Strategy at Biorasi, will be talking with Julie Walters, Founder and Executive Director...
"What can I contribute that my doctor can't contribute? And that's a real 'a-ha' moment when we share with them how they're the experts...