Episode 10: Sharon Terry, CEO Genetic Alliance

Episode 10 September 15, 2021 00:44:02
Episode 10: Sharon Terry, CEO Genetic Alliance
Few & Far Between
Episode 10: Sharon Terry, CEO Genetic Alliance

Sep 15 2021 | 00:44:02

/

Show Notes

Why is the sharing of data so crucial to #raredisease research? Tune in for today's full episode of Few & Far Between. Episode 10 features Sharon Terry, CEO at Genetic Alliance and #pseudoxanthomaelasticum (PXE) advocate.

Other Episodes

Episode 7

August 04, 2021 00:38:14
Episode Cover

Episode 7: US Congressman Gus Bilirakis

On today's podcast, US Congressman Gus Bilirakis joins host Wayne Bowden to discuss the importance of rare disease awareness and treatment.

Listen

Episode 26

December 07, 2022 00:39:02
Episode Cover

Episode 26: Chris Min, CMO and Interim CEO at Longeveron, Inc.

"Try to find the people who have a really strong background in regulatory science, who really understand the fundamentals, and who you believe can...

Listen

Episode 2

May 26, 2021 00:39:31
Episode Cover

Episode 2: Julie Walters, Founder and Executive Director of Xperiome/Raremark

On today’s podcast, host Wayne Bowden, Vice President of Partnerships and Strategy at Biorasi, will be talking with Julie Walters, Founder and Executive Director...

Listen