Why is the sharing of data so crucial to #raredisease research? Tune in for today's full episode of Few & Far Between. Episode 10 features Sharon Terry, CEO at Genetic Alliance and #pseudoxanthomaelasticum (PXE) advocate.
"Try to find the people who have a really strong background in regulatory science, who really understand the fundamentals, and who you believe can...
Raising awareness for rare diseases, such as Angelman Syndrome, should not be something parents, patients, and advocates have to do alone. Today's episode of...
"Patients have already been exposed to these large language models (LLMs). Yes, they are aware of the risks, but they are also very aware...