On today's podcast, speaker and rare disease advocate David Rose talks with Biorasi's Dr. Raul Silveira about occipital horn syndrome and supporting rare disease patients in the workforce.
Social media platforms and podcasts are spotlighting the untold stories of rare disease patients and their families. Find out more in today's Few &...
"What can I contribute that my doctor can't contribute? And that's a real 'a-ha' moment when we share with them how they're the experts...