On today's podcast, speaker and rare disease advocate David Rose talks with Biorasi's Dr. Raul Silveira about occipital horn syndrome and supporting rare disease patients in the workforce.
“I think one of the key insights and observations you make when you have a child who's sick and you spend time with other...
"We have to rethink the sense of clinical research from the point of view that if we have the possibility to have markers that...
Why are advocacy and accessibility so important to rare diseases such as Batten Disease? On this week’s Few & Far Between podcast episode, Biorasi’s...