On today's podcast, speaker and rare disease advocate David Rose talks with Biorasi's Dr. Raul Silveira about occipital horn syndrome and supporting rare disease patients in the workforce.
"I think all disciplines go through a process, a journey of being imagined and then becoming a science and then becoming a discipline of...
"If you bring powerful technology to a problem that is well understood, then you can really make a difference." - Marc Lajoie, CEO at...
Raising awareness for rare diseases, such as Angelman Syndrome, should not be something parents, patients, and advocates have to do alone. Today's episode of...