Episode 2: Julie Walters, Founder and Executive Director of Xperiome/Raremark

Episode 2 May 26, 2021 00:39:31
Episode 2: Julie Walters, Founder and Executive Director of Xperiome/Raremark
Few & Far Between
Episode 2: Julie Walters, Founder and Executive Director of Xperiome/Raremark
/

Show Notes

On today’s podcast, host Wayne Bowden, Vice President of Partnerships and Strategy at Biorasi, will be talking with Julie Walters, Founder and Executive Director of Xperiome and the driving force behind Raremark – an innovative knowledge bank for rare disease patients.

Other Episodes

Episode 0

May 12, 2021 00:02:29
Episode Cover

Episode 0: Welcome to the Few & Far Between Podcast

Welcome to Few & Far Between: Conversations About Rare Disease Research with your host, Chris O'Brien. Episode Zero contains everything you need to know about the podcast and Biorasi's goal to provide an open discussion on trending topics and innovations in rare and urgent disease clinical research.     ...

Listen

Episode 8

August 18, 2021 00:41:04
Episode Cover

Episode 8: David Rose, Rare Disease Speaker and Advocate

On today's podcast, speaker and rare disease advocate David Rose talks with Biorasi's Dr. Raul Silveira about occipital horn syndrome and supporting rare disease patients in the workforce. ...

Listen

Episode 17

January 12, 2022 00:39:58
Episode Cover

Episode 17: Amy Fenton Parker, President and CEO at Batten Disease Support and Research Organization (BDSRA)

Why are advocacy and accessibility so important to rare diseases such as Batten Disease? On this week’s Few & Far Between podcast episode, Biorasi’s Becky Knockemus talks with Amy Fenton Parker, President and CEO at Batten Disease Support and Research Organization (BDSRA). ...

Listen