Episode 10: Sharon Terry, CEO Genetic Alliance

Episode 10 September 15, 2021 00:44:02
Episode 10: Sharon Terry, CEO Genetic Alliance
Few & Far Between: Conversations from the Front Lines of Drug Development
Episode 10: Sharon Terry, CEO Genetic Alliance

Sep 15 2021 | 00:44:02

/

Show Notes

Why is the sharing of data so crucial to #raredisease research? Tune in for today's full episode of Few & Far Between. Episode 10 features Sharon Terry, CEO at Genetic Alliance and #pseudoxanthomaelasticum (PXE) advocate.

Other Episodes

Episode 37

January 24, 2024 00:41:31
Episode Cover

Episode 37: Will Greene, Prader-Willi Syndrome patient advocate, Healthcare Engagement Lead at Roche

"The history of rare disease drug development indicates that once you start looking harder for cases, you often tend to find them." - Will...

Listen

Episode 0

May 12, 2021 00:02:29
Episode Cover

Episode 0: Welcome to the Few & Far Between Podcast

Welcome to Few & Far Between: Conversations About Rare Disease Research with your host, Chris O'Brien. Episode Zero contains everything you need to know...

Listen

Episode 24

October 06, 2022 00:39:58
Episode Cover

Episode 24: Gadi Lachman, President and CEO, TriNetX

Can data sharing make the world a better place? Listen in to the latest episode of Few & Far Between. Biorasi CEO, Chris O'Brien,...

Listen