Why is the sharing of data so crucial to #raredisease research? Tune in for today's full episode of Few & Far Between. Episode 10 features Sharon Terry, CEO at Genetic Alliance and #pseudoxanthomaelasticum (PXE) advocate.
"And what I was really surprised about was that everybody was doing data collection in a different way. And I kept thinking that, gosh,...
Today on the Biorasi Few & Far Between podcast: What if you could read a story before its official release? Competitive intelligence gives you...
How do you obtain the best possible patient care available? On this week's Few & Far Between podcast, host Chris O'Brien welcomes patient advocacy...