Why is the sharing of data so crucial to #raredisease research? Tune in for today's full episode of Few & Far Between. Episode 10 features Sharon Terry, CEO at Genetic Alliance and #pseudoxanthomaelasticum (PXE) advocate.
On today's podcast, speaker and rare disease advocate David Rose talks with Biorasi's Dr. Raul Silveira about occipital horn syndrome and supporting rare disease...
"You have to have the right people, the right team, and good science." - John Celebi, President and CEO, Sensei Bio Welcome back to...
Social media platforms and podcasts are spotlighting the untold stories of rare disease patients and their families. Find out more in today's Few &...